Deb said:<[email hidden]> wrote:>
Quoted message said:Thanks Steve. I realize that making any sort of progress is
probably out of the question but I was just hoping to minimize
(or as you say maintain) any muscle loss that I may incur
when on the prednisone. I'm thinking that the dosage I'm
being put on is not that all that high so as long as
maintain my protein intake and get my rest I can attempt
to continue with my current workout intensity as is. As you
say I will listen to my body and see how things go..hopefully
at the end of 6 weeks it will be fine and I can resume
my progress..hopefully.
Quoted message said:Please be very careful....I have refused a "short course" of prednisone
(also for colitis) two times now when my doc said it would be "fine"
after having read personal stories for years about people who did a
similar "short course" and could not wean off that last 5 mg daily dose
without flaring horribly. Also stories about people going nuts with
mania, night sweats, horrific weight gain and permanent changes in
metabolism (always for the worse), moon face that wouldn't go away even
long after stopping the pred, and osteoporosis despite being on a
"low-dose," "short course."
Quoted message said:Personally I would not take the pred unless I was on the verge of
losing my colon...but of course that is just my personal choice, and I
have no idea how severe your case is right now.
Quoted message said:I am assuming you have already tried every single 5-ASA drug, and the
cortenemas too, which are much more localized and can usually help you
avoid systemic symptoms. If not, you should start with those
first...Asacol, Colazal, Dipentum....what about Imuran or Budesonide?
Pred is truly a "double edged sword" and most (good) docs won't
prescribe it unless as a last resort.
However, some good docs prescribe very aggressive prednisone treatment
as being the method most likely to stop the damaging inflammation
fast. The idea is that the less damaged you are by ulcerative flares
the easier it is going to be to keep the colitis under control. I had
a GI doc I considered very good who believed that those docs who only
go to prednisone as a last resort were damaging their patients and
making control of their colitis nire difficult. She even suspected
that aggressive prednisone therapy combined with early enough
diagnosis might lead to small enough ulcerative damage that it was
fully healable, leading to full permanent remission.
She suspected that I might such a case. Since I've now been nearly a
decade without the slightest suspicion of UC, take nothing for it, eat
no special diet, and often do some of the things sufferers from
ulcerative colitis are supposed to avoid, it looks as though she might
have been right. I consider myself fully cured of ulcerative colitis,
and I attribute it to early diagnosis combined with immediate very
aggressive prednisone treamtment. However, my GI clinic prefers to say
that I'm simply enjoying an unusually long and robust remission :-)
--
Chris Malcolm [email hidden] +44 (0)131 651 3445 DoD #205
IPAB, Informatics, JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
[http://www.dai.ed.ac.uk/homes/cam/]