Creating a Leukemia Newsgroup

Peter M. Brown said:

There are a lot of newsgroups for particular forms of
cancer but none of which are for Leukemia. How do I go
about creating such a newsgroup?

There are two ways to create a newsgroup. The formal way to
create a newsgroup in the comp, humanities, misc, news, rec,
soc, sci, talk hierarchies. This involves announcements,
discussion, votes, etc. Guidelines for this procedure are
described here:

How to Create a New Usenet Newsgroup faqs.orgcreatingOpen ↗
newsgroups/part1/

The second way is to start an alt newsgroup
(alt.support.cancer.leukemia perhaps?). alt newsgroups
don't have formal procedures, but there are suggested
methods to improve the acceptance of your newsgroup by
other Sys Admins:

So You Want to Create an Alt Newsgroup faqs.orgalt creationOpen ↗
guide/

Lance
*****

Peter M. Brown said:

There are a lot of newsgroups for particular forms of
cancer but none of which are for Leukemia. How do I go
about creating such a newsgroup?

Thanks

Pete

Hi Pete,

Assuming you are looking for a support newsgroup. Is there
problems (or complications) with the ones (for leukemia) at
acor.orgacor.orgOpen ↗ ? I see there's at least 7 there (maybe
more) AML, CLL, ALL-L, ALL-KIDS, CLL-CN (Canadian), CML,
HAIRYCELL (3500 subscribers +/-)

or were you aware of (and tried to confirm that they are
still active) the ones here (and polled them to see if they
thought a newsgroup would be used (or not)
fcco.orgresources.htmlOpen ↗ HEM-ONC is a mailing list
providing support for Leukemia, Lymphoma, and Multiple
Myeloma. or A.L.L. DISCUSSION LIST

The main purpose being that you want to get as many people
together, not splintered out in various resources, yet meet
a need (I guess) that is not already addressed elsewhere.

and I see what Lance posted, reads in part, as follows:
faqs.orgalt creation guideOpen ↗
* Not Proposed in alt.config: Some newsadmins will not
create any groups that haven't been discussed in
alt.config (and after waiting several days for the
responses). Posting your idea for a new group to
alt.config is a very good idea anyway. Someone may have
already created the group you proposed, or something
similar. They may also point you to a mailing list that
you might not have known about. They also will probably
tell you if your group is poorly named. Eric Ziegast has
this to say about alt.config: [end quoted material from
that web page]

If you are looking for discussions where doctors
(specialists) *might* be (or *might* go to discuss) you
might want to create a hematology newsgroup (
sci.med.hematology )? Which might cover all blood
diseases/conditions? and would perhaps start with sci
(instead of alt). However, I see on sci.med and
sci.med.pathology they're not very active and/or not very
keen on answering patient questions.

If you decide to go ahead (and use alt.config), a poster
named Hawk on alt.config has 3 or 4 very good links in his
signature.

Just thoughts, J

There are some leukemia lists in yahoo groups.

"Lance" <[email hidden]> wrote in message news:2gke51F3tq91U1@uni-
berlin.de...

Quoted message said:

Peter M. Brown said:

There are a lot of newsgroups for particular forms of
cancer but none of which are for Leukemia. How do I go
about creating such a newsgroup?

There are two ways to create a newsgroup. The formal way
to create a newsgroup in the comp, humanities, misc, news,
rec, soc, sci, talk hierarchies. This involves
announcements, discussion, votes, etc.

Guidelines

Quoted message said:

for this procedure are described here:

How to Create a New Usenet Newsgroup faqs.orgcreatingOpen ↗
newsgroups/part1/

The second way is to start an alt newsgroup
(alt.support.cancer.leukemia perhaps?). alt newsgroups
don't have formal procedures, but there are suggested
methods to improve the acceptance of your newsgroup by
other Sys Admins:

So You Want to Create an Alt Newsgroup faqs.orgalt creationOpen ↗
guide/

Lance
*****

"J" <jarretiè[email protected]> wrote in message
"]news:[email hidden]...

Quoted message said:

Peter M. Brown said:

There are a lot of newsgroups for particular forms of
cancer but none of which are for Leukemia. How do I go
about creating such a newsgroup?

Thanks

Pete

Hi Pete,

Assuming you are looking for a support newsgroup. Is there
problems (or complications) with the ones (for leukemia)
at acor.orgacor.orgOpen ↗ ?

The reason for a newsgroup is that many people prefer one
medium over another. I.e. some people who used a web based
discussion forum have a tendancy not to use newsgroups.
People who use newsgroups have a tendancy not to use web
based discussion forums. When there is a person seeking a
quick answer to a serious Leukemia problem/question then it
would be better to have a newsgroup for it in addition to
the web based forums. Especially since I believe more
technical people/scientists might tend to the newsgroups
rather then the web based forums.

I didn't care for the acor forum. Its setup is clumsy. I
love the Leukemia and Lymphoma Society's discussion forum
over all other forums.

Quoted message said:

The main purpose being that you want to get as many people
together, not splintered out in various resources, yet
meet a need (I guess) that is not already addressed
elsewhere.

It is my experiene that different people have different
preferances and as such there will never be one place where
everyone goes. For some reason I don't understand, some
people just won't use both.

Quoted message said:

and I see what Lance posted, reads in part, as follows:
faqs.orgalt creation guideOpen ↗
* Not Proposed in alt.config: Some newsadmins will not
create any groups that haven't been discussed in
alt.config (and after waiting several days for the
responses). Posting

your

Quoted message said:

idea for a new group to alt.config is a very good idea
anyway. Someone may have already created the group you
proposed, or something similar. They

may

Quoted message said:

also point you to a mailing list that you might not have
known about. They also will probably tell you if your
group is poorly named. Eric Ziegast

has

Quoted message said:

this to say about alt.config: [end quoted material from
that web page]

Thanks. I'll check into it.

Quoted message said:

If you are looking for discussions where doctors
(specialists) *might* be (or *might* go to discuss) you
might want to create a hematology newsgroup

(

Quoted message said:

sci.med.hematology )? Which might cover all blood
diseases/conditions? and would perhaps start with sci
(instead of alt). However, I see on sci.med and
sci.med.pathology they're not very active and/or not very
keen on answering patient questions.

Too specific I think.

Quoted message said:

If you decide to go ahead (and use alt.config), a poster
named Hawk on alt.config has 3 or 4 very good links in his
signature.

Thank you

Pete

Peter M. Brown said:

The reason for a newsgroup is that many people prefer one
medium over another. I.e. some people who used a web based
discussion forum have a tendancy not to use newsgroups.

Possible but not necessarily but I realize asking the same
question (or belonging to) in two different mediums can be a
time-consuming process.

Quoted message said:

People who use newsgroups have a tendancy not to use web
based discussion forums. When there is a person seeking a
quick answer to a serious Leukemia problem/question then
it would be better to have a newsgroup for it in addition
to the web based forums. Especially since I believe more
technical people/scientists might tend to the newsgroups
rather then the web based forums.

Well, it's my understanding that (some) ACOR groups do have
technical people. I don't know which.

I don't know how they handle legal liability.

It's a problem here for some doctors who've left.
(Americans)

Here's a quote from one. "The warning came from my liability
insurer, as part of a malpractice course. They specifically
noted that any doctor -- patient communication establishes a
relationship; and made a specific warning NOT to participate
in usenet groups or provide "electronic advice." I
subsequently asked about my "disclaimer" and was told that
was NOT sufficient. The fact that I might offer advice
without a full evaluation was fealt to increase my potential
liability. I was specifically told NOT participate. I don't
think an anonymous service would shield me since a court
order to provide my name/location would be fairly easy to
obtain, at least an American lawyer could probably obtain my
name, and given that I live in America a lawsuit could then
follow. It should also be noted that the legal department of
the Hospital of the University of Pennsylvania (home of one
of America's finest law schools, as well as medical schools)
gave them the same advice.

If I participate, I lose my malpractice coverage.
Disclaimers, and even the support group purchasing
malpractice wouldn't relieve me of that liability.

As you know, due to medical liability issues I no longer
participate in the group. You may, however, post any of my
prior responses in the FAQ section. Better yet, fix medical
liability so I can return."

So what I'm saying is you may have problems getting
scientists/technical people answers here or any newsgroup
(unless they're in other countries AND time is a factor for
many of them, they have their own work-related
responsibilities.

FWIW

J
PS I'm not sure where he got the idea of a "newsgroup"
paying his liability insurance. That wasn't my idea, nor
would it be practical.

Peter M. Brown said:

"J" <jarretiè[email protected]> wrote in message <snip>

Quoted message said:

sci.med.hematology )? Which might cover all blood
diseases/conditions? and would perhaps start with sci
(instead of alt). However, I see on sci.med and
sci.med.pathology they're not very active and/or not
very keen on answering patient questions.

Too specific I think.

I see what you mean, on the other hand, it would included
non-cancer blood health issues, which would have made it
not specific enough, but possibly more chance of drawing
teckkie poeple.

Quoted message said:

Quoted message said:

If you decide to go ahead (and use alt.config), a poster
named Hawk on alt.config has 3 or 4 very good links in
his signature.

Peter, if you decide to go ahead, please be aware of the
alt.support.cancer newsgroup Charter
cancersupporters.comcharter.htmlOpen ↗
Crossposting to related newsgroups is permitted but there
are certain subjects (or posters or behaviours) who are
discouraged or in some cases reported. So something to keep
in mind and read so you can warn your readers and posters
about cross-posting.

Do let us know. In the FAQ part (Links I think) we put names
of other cancer newsgroups and/or someone here or on the
alt.support.cancer newsgroup can refer to "your" newsgroup
or you can post yourself (at regular intervals) under the
subject of Leukemia, once it's up and running and many
servers are carrying it. J

"J" <jarretiè[email protected]> wrote in message
"]news:[email hidden]...

Quoted message said:

Peter M. Brown said:

"J" <jarretiè[email protected]> wrote in message <snip>

Quoted message said:

sci.med.hematology )? Which might cover all blood
diseases/conditions?

and

Quoted message said:

Quoted message said:

Quoted message said:

would perhaps start with sci (instead of alt).
However, I see on

sci.med

Quoted message said:

Quoted message said:

Quoted message said:

and sci.med.pathology they're not very active and/or
not very keen on answering patient questions.

Too specific I think.

I see what you mean, on the other hand, it would included
non-cancer blood health issues, which would have made it
not specific enough, but possibly

more

Quoted message said:

chance of drawing teckkie poeple.

Quoted message said:

Quoted message said:

If you decide to go ahead (and use alt.config), a
poster named Hawk on alt.config has 3 or 4 very good
links in his signature.

Peter, if you decide to go ahead, please be aware of the

alt.support.cancer

Quoted message said:

newsgroup Charter
cancersupporters.comcharter.htmlOpen ↗
Crossposting to related newsgroups is permitted but there
are certain

subjects

Quoted message said:

(or posters or behaviours) who are discouraged or in some
cases reported.

So

Quoted message said:

something to keep in mind and read so you can warn your
readers and

posters

Quoted message said:

about cross-posting.

Do let us know. In the FAQ part (Links I think) we put
names of other

cancer

Quoted message said:

newsgroups and/or someone here or on the
alt.support.cancer newsgroup can

refer

Quoted message said:

to "your" newsgroup or you can post yourself (at regular
intervals) under

the

Quoted message said:

subject of Leukemia, once it's up and running and many
servers are

carrying it.

Quoted message said:

J

I think the Leukemia-Lymphoma Societies Discussion Board
needs more visibily. See leukemia.orgleukemia.orgOpen ↗ - click on
"Discussion Boards". Who better for a Leukemia-Lymphoma
discussion board than them? :-)

Thanks

Pete

Pmb said:

I think the Leukemia-Lymphoma Societies Discussion Board
needs more visibily. See leukemia.orgleukemia.orgOpen ↗ - click
on "Discussion Boards". Who better for a Leukemia-Lymphoma
discussion board than them? :-)

Thanks

Pete

Well, why is there duplicate websites (please)?
leukemia.orghm llsOpen ↗ leukemia-leukemia-Open ↗
lymphoma.org/hm_lls J