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is this right ...pls help !!

Started by Manuel · · Last activity · 5 posts · 650 views

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General fitness, health and nutrition
Published
19 March 2004
Last activity
26 March 2004
Original author
Manuel
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  1. Hi, My sister, a thirty three year old, has been diagnosed
    with adenocarcimoma. They have also established
    brochioalveolar carcinoma and a suspected malignant nodule
    in her thyroid gland. In spite of this the primary cancer
    has not yet been identified.

    At present she is hospitalised where several tests have been
    undertaken, albeit, to my layman's judgment at an absurdly
    leisurely pace. She has been interned now for 29 days and
    although they have eliminated breast cancer and identified
    the malignancies mentioned above, no therapy has yet been
    delivered nor determined. At the moment, in fact tomorrow,
    she will undergo a biopsy of the thyroid gland to ascertain
    if this could have been the primary site.

    My wholehearted request is if you could answer these
    uncertainties:

    Is this the standard procedure?

    Isn't time of essence?

    Should she receive some sort of prophylactic therapy whiles
    further investigations are carried out?

    What are the chances of a condition like hers being
    treatable?

    I appreciate that it may be difficult to answer some of the
    questions above. Regrettably, the doctors involved are not
    being very empathetic and are exercising a very reserved
    release of information. Obviously, I do not expect to be
    privy of technicalities nor of preliminary evaluations,
    nevertheless as a very concerned family member I seek
    essential information, thus my request to this forum.

    I await your reply with much interest.

    Yours truly,

    Manuel

  2. Manuel said:

    Hi, My sister, a thirty three year old, has been diagnosed
    with adenocarcimoma. They have also established
    brochioalveolar carcinoma and a suspected malignant nodule
    in her thyroid gland. In spite of this the primary cancer
    has not yet been identified.

    At present she is hospitalised where several tests have
    been undertaken, albeit, to my layman's judgment at an
    absurdly leisurely pace. She has been interned now for
    29 days and although they have eliminated breast cancer
    and identified the malignancies mentioned above, no
    therapy has yet been delivered nor determined. At the
    moment, in fact tomorrow, she will undergo a biopsy of
    the thyroid gland to ascertain if this could have been
    the primary site.

    My wholehearted request is if you could answer these
    uncertainties: Is this the standard procedure? Isn't time
    of essence? Should she receive some sort of prophylactic
    therapy whiles further investigations are carried out?
    What are the chances of a condition like hers being
    treatable? I appreciate that it may be difficult to answer
    some of the questions above. Regrettably, the doctors
    involved are not being very empathetic and are exercising
    a very reserved release of information. Obviously, I do
    not expect to be privy of technicalities nor of
    preliminary evaluations, nevertheless as a very concerned
    family member I seek essential information, thus my
    request to this forum. I await your reply with much
    interest. Yours truly,

    Manuel

    Hello Manuel, Are you in Gibraltar ( near Spain and
    Portugal) ? There 4 types of thyroid cancer
    endocrineweb.comthyroidca.html

    It takes time and patience to sort that out, because there
    are different specialists involved for the thyroid. The
    treatments for thyroid cancers are different (not
    chemotherapy), so hold on until they've done the biopsy.
    I've had one and my nodule was benign.

    Maybe she has two types of cancers or the primary is in
    the lung(s)?

    Chemo /radiation cannot (as far as I know) be given at the
    same time as the treatment for thyroid cancer, so they have
    to determine which is the most urgent.

    It takes time and other investigations to find out if the
    lung cancer has spread. cancer.orgc
    ontent/cri_2_4_1x_what_is_lung_cancer_26.asp

    Non-small Cell Lung Cancer The remaining 80% of lung cancers
    are non-small cell (NSCLC). There are three sub-types of
    NSCLC. The cells in these sub-types differ in size, shape,
    and chemical make-up.

    Squamous Cell Carcinoma: About 25% - 30% of all lung
    cancers are squamous cell carcinomas. They are associated
    with a history of smoking and tend to be found centrally,
    near a bronchus.

    Adenocarcinoma: This type accounts for about 40% of lung
    cancers. It is usually found in the outer region of lung.
    People with one type of adenocarcinoma, known as
    bronchioloalveolar carcinoma (sometimes called
    bronchioalveolar carcinoma or bronchoalveolar carcinoma),
    tend to have a better outlook (prognosis) than those with
    other types of lung cancer. Large-cell Undifferentiated
    Carcinoma: This type of cancer accounts for about 10% 15% of
    lung cancers. It may appear in any part of the lung, and it
    tends to grow and spread quickly resulting in a poor
    prognosis.[]

    I realize it must be a worry for you. You may wish to post
    to news:alt.support.cancer (which is for patients and family
    members). We have doctors who read that newsgroup also.

    You may also wish to use a newsreader such as Outlook
    Express or netscape (if possible) because it can take 3 or
    more hours for your posts to show up on newsgroup using
    Google, and similarly our replies back to you.

    Keep in touch and let us know. J - not a doctor

  3. J <[email hidden]> wrote in message news:<[email hidden]>...

    Quoted message said:
    Manuel said:

    Hi, My sister, a thirty three year old, has been
    diagnosed with adenocarcimoma. They have also
    established brochioalveolar carcinoma and a suspected
    malignant nodule in her thyroid gland. In spite of this
    the primary cancer has not yet been identified.

    At present she is hospitalised where several tests have
    been undertaken, albeit, to my layman's judgment at an
    absurdly leisurely pace. She has been interned now for
    29 days and although they have eliminated breast cancer
    and identified the malignancies mentioned above, no
    therapy has yet been delivered nor determined. At the
    moment, in fact tomorrow, she will undergo a biopsy of
    the thyroid gland to ascertain if this could have been
    the primary site.

    My wholehearted request is if you could answer these
    uncertainties: Is this the standard procedure? Isn't
    time of essence? Should she receive some sort of
    prophylactic therapy whiles further investigations are
    carried out? What are the chances of a condition like
    hers being treatable? I appreciate that it may be
    difficult to answer some of the questions above.
    Regrettably, the doctors involved are not being very
    empathetic and are exercising a very reserved release of
    information. Obviously, I do not expect to be privy of
    technicalities nor of preliminary evaluations,
    nevertheless as a very concerned family member I seek
    essential information, thus my request to this forum. I
    await your reply with much interest. Yours truly,

    Manuel

    Hello Manuel, Are you in Gibraltar ( near Spain and
    Portugal) ? There 4 types of thyroid cancer
    endocrineweb.comthyroidca.html

    It takes time and patience to sort that out, because there
    are different specialists involved for the thyroid. The
    treatments for thyroid cancers are different (not
    chemotherapy), so hold on until they've done the biopsy.
    I've had one and my nodule was benign.

    Maybe she has two types of cancers or the primary is in
    the lung(s)?

    Chemo /radiation cannot (as far as I know) be given at the
    same time as the treatment for thyroid cancer, so they
    have to determine which is the most urgent.

    It takes time and other investigations to find out if the
    lung cancer has spread. cancer.orgcri
    /content/cri_2_4_1x_what_is_lung_cancer_26.asp

    Non-small Cell Lung Cancer The remaining 80% of lung
    cancers are non-small cell (NSCLC). There are three sub-
    types of NSCLC. The cells in these sub-types differ in
    size, shape, and chemical make-up.

    Squamous Cell Carcinoma: About 25% - 30% of all lung
    cancers are squamous cell carcinomas. They are associated
    with a history of smoking and tend to be found centrally,
    near a bronchus.

    Adenocarcinoma: This type accounts for about 40% of lung
    cancers. It is usually found in the outer region of lung.
    People with one type of adenocarcinoma, known as
    bronchioloalveolar carcinoma (sometimes called
    bronchioalveolar carcinoma or bronchoalveolar carcinoma),
    tend to have a better outlook (prognosis) than those with
    other types of lung cancer. Large-cell Undifferentiated
    Carcinoma: This type of cancer accounts for about 10% 15%
    of lung cancers. It may appear in any part of the lung,
    and it tends to grow and spread quickly resulting in a
    poor prognosis.[]

    I realize it must be a worry for you. You may wish to
    post to news:alt.support.cancer (which is for patients
    and family members). We have doctors who read that
    newsgroup also.

    You may also wish to use a newsreader such as Outlook
    Express or netscape (if possible) because it can take 3 or
    more hours for your posts to show up on newsgroup using
    Google, and similarly our replies back to you.

    Keep in touch and let us know. J - not a doctor

    Hi J, thanks for your reply. Yes I'm in Gibraltar although
    my sister is in a hospital in Spain. I do appreciate that
    tests have to be done but as stated it all seems to go at a
    very slow pace(i.e they said they suspected the thyroid
    option last thursday but have failed to do the biopsy until
    today Thursday, thats a whole week gone by!, surely time is
    a major player in this situations ?. now they say they hope
    to have an answer and a treatment by next Tuesday, so I
    guess we will have to wait till then. I will post my
    original message again in the the newsgroup you suggested
    although it will have to be through google as my ISP does
    not provide this facilty. I will post some more info when it
    becomes available. regards Manuel

  4. Manuel said:

    Hi, My sister, a thirty three year old, has been diagnosed
    with adenocarcimoma. They have also established
    brochioalveolar carcinoma and a suspected malignant nodule
    in her thyroid gland. In spite of this the primary cancer
    has not yet been identified.


    We are talking 3 simultaneous, different cancers here! -
    highly unlikely.

    Quoted message said:


    At present she is hospitalised where several tests have
    been undertaken, albeit, to my layman's judgment at an
    absurdly leisurely pace. She has been interned now for
    29 days and although they have eliminated breast cancer
    and identified the malignancies mentioned above, no
    therapy has yet been delivered nor determined. At the
    moment, in fact tomorrow, she will undergo a biopsy of
    the thyroid gland to ascertain if this could have been
    the primary site.


    What did you expect in Spain, mañana?

    Quoted message said:

    My wholehearted request is if you could answer these
    uncertainties: Is this the standard procedure?


    The whole case does not sound standard

    Quoted message said:

    Isn't time of essence?


    In cancer, always..

    Quoted message said:

    Should she receive some sort of prophylactic therapy
    whiles further investigations are carried out?


    Diagnosis before therapy is important, but making a diagn
    should not take long.

    Quoted message said:

    What are the chances of a condition like hers being
    treatable?


    Everythings treatable, I think you mean cureable. If the
    bronchoalveolar ca is focal ie resectable then she is
    curable, if its diffuse/multifocal its not. The thyroid ca /
    met and the adenocarcinoma (lung/gut/cervix?) can only
    worsen this prognosis.

    --
    madiba

  5. Hi, Doctors have now discarded the thyriod as being the
    primary and have now concluded that it is a case of
    adenocarcinoma in the lungs. They have not found the primary
    and are indicating that it might possibly be in the lungs
    although they are not assuring it. All this has taken 5
    weeks now, and we are back to square one !!. They are going
    for chemo starting next week when she has to go to see this
    other doctor that will oversee the the chemo sessions.
    Personally I'm not very happy about this situation and I'm
    wondering if a second opinion is the way to go forward or
    accept this doctor's prognosis and not delay the chemo any
    more?. Another question I have is, will starting the chemo
    affect any further investigations ?. All other relevant
    imformation I suppose I will get over the next couple of
    days but at this point in time this is all I can offer.
    Waiting for your views or suggestions. best regards Manuel

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