And the punishment she'll face may be the death penalty.
How sad: in ITEM #1 [see below] we read about a young American woman who's dying as her father
tries desperately to raise the million dollars needed to pay for the organ transplants that would
save her life.
On the other hand, in ITEM #2 [below] we read a commentary about the 2003 case in which an illegal
alien from Mexico was jumped to the head of the line ahead of thousands of dying and equally-needy
citizens of the USA and given multiple organ transplants gratis. To top it off, and just as
tragically on many levels, the illegal alien who was allowed to cut ahead of the equally-needy
citizens died anyway after being given, at no cost, *multiple* rare organs any one of which could
have saved the life of a dying citizen had it gone to said citizen.
(And let us not forget the report, from this past weekend, about the US familywhich was held
hostage by a Mexican hospital until it was able to come up with $15,000 CASH. After a relative
drained his bank account and had the money sent, and confirmed as having been received by the
proper hospital authorities, one hospital employee claimed the money had not been received and
demanded ANOTHER $15,000 in CASH.)
ITEM #1:
latimes.comla me heart8feb08,1,2066062.storyOpen ↗
THE STATE $1-Million Price Tag Keeps Transplant Patient in Limbo
By Cynthia Daniels Times Staff Writer February 8, 2004
PALM DESERT — Robert Jaunsen would do anything for a chance to save his daughter's life — only
he needs $1 million to do it.
Jaunsen, a retired San Diego County sheriff's deputy, has become a crusader for his 20-year-old
daughter, who needs a heart-liver transplant. Without it, Kelli Jaunsen will probably die.
He has written numerous letters to hospitals and politicians, created a website where visitors can
make donations (www.eccoblue.org) and seeks help everywhere he can. So far he has raised a little
more than $100.
The young woman's health insurance does not cover the procedure, and few hospitals will perform the
costly surgery for free.
Before any hospital considers placing her on the transplant list, the family must present enough
money to cover the cost of her surgery and post-surgery care.
"There's no point in a carwash or bake sale; that doesn't cut it," Jaunsen said. "We cannot get
anywhere with a nickel, a dime and a tin cup. We don't have that time."
Kelli Jaunsen was born with congenital heart defects, including a condition that prevented her blood
from circulating from her heart to her lungs.
In 20 years, she has had two Fontan surgeries, open-heart procedures to make her blood bypass her
heart and flow from her body to her lungs; laser throat surgery; implantation of a pacemaker;
gallbladder removal; and other operations.
Over time, the high pressure in her veins has irreversibly damaged her liver, leaving doctors no
choice but to replace her heart and liver.
"Kelli's liver is end stage, and we don't think a heart transplant will fix that," said Dr. Inger
Olson, a pediatric cardiologist at Loma Linda University Medical Center who has treated the young
woman for about three years. "Her heart is not strong enough to get her through a liver transplant
because that's a major surgery which would probably drive her into heart failure. She might not
survive it."
Last year, one heart-liver transplant was performed in the United States, according to the United
Network for Organ Sharing, a nonprofit organization that manages transplant data, develops policy
and maintains the nationwide transplant patient waiting list. Data from the network showed only 27
heart-liver transplants had been performed in the United States since 1988, compared with more than
1,500 kidney-liver transplants during that time.
Although Kelli Jaunsen's doctors say that her surgery is a must, her insurance provider, the state-
run California Children's Services, says she is ineligible for coverage because more than one organ
is failing, said Sharon Robie, administrative director for Loma Linda University Medical Center's
heart transplant program and a transplant coordinator. Since Loma Linda decided against performing
the surgery for free, Robie has tried to find a hospital that would. So far, the responses have been
the same: Transplant patients without insurance coverage must present enough money to cover their
surgery and post-surgery care — in Kelli's case, about $1 million — before they are considered.
"We're trying to stabilize her as best as the doctors can, but we feel a bit helpless," Robie said.
"The technology is available, but the reimbursement is not."
Kelli Jaunsen, meanwhile, said she left thinking about the future to her father. She said she was
only a little scared about the surgery but eager to get well, graduate from high school and
become a veterinary technician. She hasn't been to school in 2½ years because of her surgeries
and poor health.
"I don't think about it," she said recently. "What's the point? If I thought about it, then I would
be depressed."
But she concedes that there are moments when it all gets to be too much.
"There are times when I fall apart," she said. "It's so hard to get through the day because of all
the problems. I cry because it's so hard. Then I get tired of crying and get up. It's not easy, but
I force myself to do it."
As a youngster, she combined her two loves, animals and photography, into a hobby, taking pictures
of giraffes, birds and other wildlife, and winning her first photo contest before she turned 14. But
today, her condition steals her energy, confining her to the house, where she plays video games;
tends to her three cats, two birds and a gecko; watches movies; and creates abstract art and
websites. Her nickname, Eccoblue, combines one of her favorite video games, "Ecco the Dolphin," with
her favorite color.
Instead of taking trips to the mall like other young women her age, she visits the hospital every
two to three weeks so doctors can drain the ascites fluid that builds up in her abdomen.
For Ana Jaunsen, "It's very painful to know about the situation my daughter is facing. I thought her
heart would be fixed and she would be all right and suddenly … it's terrible."
Chris Jaunsen, 23, has responded to the news by helping his sister lead a normal life — taking her
to the movies and sometimes concerts.
While she pushes herself forward, her dad forces himself to stay positive, pinning his hopes on
doctors at the University of Pittsburgh Medical Center who said they would consider performing the
surgery but must examine her condition before making any decisions.
"I honestly don't know what the risks would be or whether this is feasible," said Dr. Robert Kormos,
a professor of surgery at the University of Pittsburgh and director of heart transplantation and the
artificial heart program at the medical center. "But I'm more than happy to put her through the
evaluation."
If doctors at the center, which has performed most of the heart-liver transplants in the nation,
agree, the Jaunsens will have to relocate.
Kormos said most heart-liver transplant patients should plan to stay nearby for as long as six
months while waiting for the donated organs and remain in the area for at least six to eight weeks
after the surgery.
The move could be difficult. But if moving will save her, the Jaunsens will do it.
"Knowing what she's gone through, a life of pain and agony, and she still smiles," Robert
Jaunsen said.
"This kid's special, she's talented and we'll get this thing done one way or another."
--------------------------------------------------------------------------
--------------------------------------------------------
ITEM #2:
Organ Transplants For Illegal Aliens
By Reed Irvine and Cliff Kincaid March 7, 2003
The media’s bias on immigration was on display in the coverage of the "teenager" who got a botched
heart-lung transplant. Eventually, she became an "immigrant" and then a "Mexican immigrant." But she
was really an illegal alien smuggled into the United States. The information was initially withheld
or played down for obvious reasons. Journalists fear there could be a public backlash to illegal
aliens getting medical care in the U.S. and contributing to the soaring cost of health care
coverage. This case was even more sensitive because American citizens are on the waiting list for
the organs that this illegal alien received.
The New York Times ran a February 21st story about the ethical dilemma in the case, but it wasn’t
about an illegal alien getting medical care. It was whether it was proper for Jesica Santillan to
get a second set of organs. A separate story by Jeffrey Gettlemen and Lawrence K. Altman waited
until the 26th paragraph to reveal that her family had left illegally from Mexico and that relatives
had paid a smuggler to get them into the U.S. They settled near hospitals that specialized in the
kind of operation the girl needed. Times reporter Denise Grady said merely that "Ms. Santillan’s
family moved from Mexico to North Carolina three years ago…"
We saw the same kind of coverage in the Washington Post, which reported that Santillan’s family
had "brought her from Mexico to the United States for the potentially lifesaving operation…" A
February 23rd Post story by Rob Stein repeatedly emphasized that she was just a "teenager," without
any reference to her nationality. Later in the story, he mentioned that the parents had "smuggled
the family" into the U.S. but never used the term "illegal."
A report on CBS News said, "She is from a small town near Guadalajara, Mexico, and moved to North
Carolina with her family several years ago, believing that she would have a better chance for a
transplant if she were in the U.S." CBS made the whole thing sound legal, proper and humanitarian.
A North Carolina businessman raised funds to pay for her operation because federal law prohibits
government reimbursement for organ-transplant-related services for "undocumented aliens." There is
no dispute that she got organs—two sets of organs—that could have gone to an American citizen.
It appears she got special treatment. As noted in the press, she got the second set of organs in
"amazingly fast" time, in less than two weeks, after spending three years on a waiting list to get
the first set.
It was news to many people that non-U.S. citizens can be placed on waiting lists for transplants and
get the same priority as American citizens. A spokeswoman for the United Network for Organ Sharing
was quoted by the Associated Press as saying they cannot perform more than 5 percent of their
transplants on noncitizens. This figure has been featured in many reports. But Transweb.org, which
handles questions about organ transplants and donations, says the figure is actually ten percent.
Some people may wonder why any non-citizens are entitled to this service.
"If ye love wealth better than liberty ... servitude better than ... freedom, go home from us in
peace. We ask not your counsel or your arms ... May your chains set lightly upon you. May posterity
forget that ye were our countrymen."
- Samuel Adams