My sister-in-law has recently been diagnosed with myelofibrosis. I am interested in any information
on the treatment of myelofibrosis, also any trials and studies. I would like to know of any other
newsgoups or discussion groups. Any information that you can provide will be greatly appreciated. We
are located in Los Angeles, California Thank you!
General fitness, health and nutrition · Public discussion
Myelofibrosis
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- General fitness, health and nutrition
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- 1 February 2004
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- Ron
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Ron said:
My sister-in-law has recently been diagnosed with myelofibrosis. I am interested in any
information on the treatment of myelofibrosis, also any trials and studies. I would like to know
of any other newsgoups or discussion groups. Any information that you can provide will be greatly
appreciated. We are located in Los Angeles, California Thank you!Hi there,
Myelofibrosis seems to be a Myeloproliferative Disorder Seems to range from watchful waiting to a
bone marrow transplant. mpdfoundation.orgmd.htmlOpen ↗
acor.orgMFFAQ.htmlOpen ↗ (a "dated" ACOR FAQ
- the links don't work)Perhaps the best discussion group would be to join the private ACOR list here. listserv.acor.orgmpdOpen ↗
net.html Myeloproliferative Disorders Support List (2063 subscribers)Hope this helps and best wishes, J
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