desmoplastic small round cell round

isaak said:

My friend was diagnosed originally with desmoplastic small
round cell round tumor

I'am looking for people with any information about this
disseas and the treathment about this.

If anybody can help me i will be greatfull

thanks for reading this and i hope te speak to you
soon.....

greetings isaak amsterdam ( Holland)

Hello isaak St Jule's describes this cancer here (if you
mean abdominal). stjude.orgdiseaseOpen ↗
summaries/0,2557,449_2167_7502,00.html "Treatment Strategies
Because of diffuse involvement of the abdomen at the time of
diagnosis, complete resection of this tumor is rarely
possible. Effective treatment must rely upon chemotherapy
and radiation therapy. Recent reports suggest that
multimodal therapy including surgical debulking,
radiotherapy and high dose chemotherapy may improve survival
in a subset of patients with desmoplastic small round cell
tumor. Clearly, new therapeutic strategies are needed for
this aggressive tumor"

I've also found a webpage which seems to be collecting such
patients and their stories dsrct.compatients.htmOpen ↗
I saw one from UK, another from Canada, more than several
from the US. Some seemed to try chemo to shrink the tumors,
then surgery, then radiation therapy, then chemo. Some
seemed to have surgery, then radiation therapy, then chemo
(and various combinations and various chemo regimens).

I'm not a doctor, but I did see some rather strange
"treatments" mentioned there, so be careful what you read on
the internet. Also you'll note some of "last heard from"
dates are "pale", but still legible. It would seem those
were lost to the cancer.

There's also news:nl.support.kanker if you prefer. I can't
read that language but Jan's a nice lady over there who
speaks both.

I'll be around on one of these newsgroups. Best wishes to
you and your friend, J

You may want to look at this couples website:
dsrct.demon.co.ukdsrct.demon.co.ukOpen ↗

They seem to be connected to others and may be able to help
you.

--
Take Care, Sharon Lane
rare-cancer.orgrare-cancer.orgOpen ↗